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Tag archive for ‘rare disease’
By Robert On Tuesday, March 19th, 2019
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Huntington’s disease with George Yohrling, PhD

Huntington’s disease (HD) is a progressive brain disorder that deteriorates a person’s physical and mental abilities. It primarily affects adults; however, there is a form that affects children, albeit less More...

By Guest Author On Tuesday, May 1st, 2018
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Trichotillomania in Numbers

The numbers behind trichotillomania help tell the story of the condition. Just like there is little known about much of the condition, there also is little information concerning the numbers, the epidemiology, behind More...

By Brandon Jones On Saturday, April 28th, 2018
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Alfie Evans dies, priest kicked out of room, the world shocked over legal battle, ‘Alfie and his parents must know their place’

British toddler Alfie Evans died in hospital on Saturday as doctors withdrew life support, the child’s parents said, following a highly publicized legal battle and a campaign that drew support from Pope Francis, More...

By Robert On Monday, July 6th, 2015
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KU senior tells story of battle with Dermatomyositis, a rare disease where less than 2000 people suffer

As journalist Sierra Upton notes in a recent YouTube report: “Imagine if you had to wear a hat, a sweatshirt, pants and sunscreen just to walk down the block. Now imagine that you could only be outside for More...


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