Charlie Gard fight continues as the ‘death panel’ will review ‘new medical evidence’ to keep the baby alive
Charlie Gard was born in England eleven months ago with mitochondrial DNA depletion syndrome, a condition that leads to weakened muscles, organ dysfunction and other really awful symptoms.
It’s a poor prognosis for most patients, but there are some experimental treatments going on in the United States. Like many parents, Charlie’s parents raised all the money they could, $1.6 million to be exact, and tried to have him moved to America to keep up the fight.
The hospital said he shouldn’t be moved, suing the parents in court to keep him there and “die with dignity.”
photo Alyson Jones
U.K.’s death panel, called “European Court of Human Rights,” convened in Strasbourg, France ad ruled AGAINST the parents.
Now the UK’s High Court will reconvene Thursday to hear new medical evidence.
Chris Gard and Connie Yates, have until Wednesday to submit new written evidence regarding the viability of having Charlie treated abroad with experimental nucleoside therapy.
On Monday, the judge instructed Charlie’s parents to cite the source of all evidence, when it was produced and what difference will it make for their son.
A family friend read a statement expressing appreciation from Yates and Gard: “Charlie’s parents look forward to the new evidence being heard before the High Court this Thursday 13th July that will result in Charlie’s parents taking him to either the United States of America or to Italy for ground breaking treatment.”
Dr. Neena Modi, president of the Royal College of Paediatrics and Child Health, said Monday that the high-profile interventions in the case are “unhelpful.”
“If we can help little #CharlieGard, as per our friends in the U.K. and the Pope, we would be delighted to do so,” President Trump tweeted.
“If Charlie is still fighting then they are still fighting,” said the parents’ statement.
[…] diagnosis is similiar to Charlie Gard’s case, where the sufferers do not get energy to their muscles, kidneys and […]
[…] CHARLIE GARD SENTENCED TO DEATH BY EU “DEATH PANEL” REFUSING TO ALLOW PARENTS TO TAKE THE BABY TO AMERICA FOR TREATMENT – READ HERE […]