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Published On: Tue, Jul 11th, 2017

Charlie Gard fight continues as the ‘death panel’ will review ‘new medical evidence’ to keep the baby alive

Charlie Gard was born in England eleven months ago with mitochondrial DNA depletion syndrome, a condition that leads to weakened muscles, organ dysfunction and other really awful symptoms.

It’s a poor prognosis for most patients, but there are some experimental treatments going on in the United States. Like many parents, Charlie’s parents raised all the money they could, $1.6 million to be exact, and tried to have him moved to America to keep up the fight.

The hospital said he shouldn’t be moved, suing the parents in court to keep him there and “die with dignity.”

photo Alyson Jones

U.K.’s death panel, called “European Court of Human Rights,” convened in Strasbourg, France ad ruled AGAINST the parents.

Now the UK’s High Court will reconvene Thursday to hear new medical evidence.

Chris Gard and Connie Yates, have until Wednesday to submit new written evidence regarding the viability of having Charlie treated abroad with experimental nucleoside therapy.

On Monday, the judge instructed Charlie’s parents to cite the source of all evidence, when it was produced and what difference will it make for their son.

A family friend read a statement expressing appreciation from Yates and Gard: “Charlie’s parents look forward to the new evidence being heard before the High Court this Thursday 13th July that will result in Charlie’s parents taking him to either the United States of America or to Italy for ground breaking treatment.”

Dr. Neena Modi, president of the Royal College of Paediatrics and Child Health, said Monday that the high-profile interventions in the case are “unhelpful.”

“Only the family, the doctors treating Charlie, and now the legal teams involved, know the details of complex issues that define his situation,” she said in a statement.
“These issues — unknown to us and all those voicing opinions — will have been considered very carefully in reaching any decision. This is why interventions by external agencies or individuals, no matter how well-intended, are unhelpful.”

“If we can help little #CharlieGard, as per our friends in the U.K. and the Pope, we would be delighted to do so,” President Trump tweeted.

“If Charlie is still fighting then they are still fighting,” said the parents’ statement.

 

About the Author

- Writer and Co-Founder of The Global Dispatch, Brandon has been covering news, offering commentary for years, beginning professionally in 2003 on Crazed Fanboy before expanding into other blogs and sites. Appearing on several radio shows, Brandon has hosted Dispatch Radio, written his first novel (The Rise of the Templar) and completed the three years Global University program in Ministerial Studies to be a pastor. To Contact Brandon email [email protected] ATTN: BRANDON

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  1. Alfie Evans dies, priest kicked out of room, the world shocked over legal battle, 'Alfie and his parents must know their place' | The Global Dispatch | The Global Dispatch says:

    […] diagnosis is similiar to Charlie Gard’s case, where the sufferers do not get energy to their muscles, kidneys and […]

  2. Fake News: Rev Patrick Mahoney attacked for support in Charlie Gard case due to his ‘criminal record’ | The Global Dispatch says:

    […] CHARLIE GARD SENTENCED TO DEATH BY EU “DEATH PANEL” REFUSING TO ALLOW PARENTS TO TAKE THE BABY TO AMERICA FOR TREATMENT – READ HERE […]

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